“TEST ME / for hiv” challenges assumptions about HIV risk in the Asian and Pacific Islander Communities
On May 19 2009, A&PI HIV/AIDS Awareness Day, APICHA will be joined by elected officials and community leaders on the steps of City Hall to launch the campaign and urge the public to take control. May is also Asian Heritage month.
Currently, A&PIs are the only racial/ethnic group in New York that have not experienced a decline in the number of new HIV diagnoses, but only six percent (6%) of A&PI New Yorkers report that their doctor recommended an HIV test. This presents a major public health concern that could have a far-reaching impact.
APICHA has identified limited access to HIV testing as a critical unmet need that requires the attention of doctors and the community. Often, doctors have preconceived assumptions about the sexual risk factors and lifestyle choices of A&PIs based on the stereotype of Asians as “the model minority.” APICHA seeks to change attitudes among doctors by encouraging A&PIs to begin the conversation in an effort to address this major public health problem.
The heart of the campaign will be a coordinated effort to have volunteers visit their doctor’s office wearing a tee shirt that reads “TEST ME / for hiv”. The action is meant to initiate conversation and create an opportunity to educate doctors about the discrepancy.
APICHA hopes that the earned media in both mainstream and ethnic press and work with religious and community leaders will expand the discussion about HIV in various A&PI communities. The campaign will also disseminate information about the issue, and educate A&PI community members about obtaining an HIV test.
APICHA’s mission is to combat HIV/AIDS stigma and related discrimination, to prevent the spread of the HIV/AIDS pandemic in Asian & Pacific Islander communities, and to provide care and treatment for Asian & Pacific Islanders living with HIV/AIDS and their families. The organization was founded twenty years ago and remains the only Pan-Asian HIV/AIDS organization devoted to working with A&PI communities in New York City.
“I applaud APICHA for empowering Asian and Pacific Islanders to take control of their health,” said Dr. Monica Sweeney Assistant Commissioner of the New York City Health Department’s Bureau of HIV/AIDS Prevention and Control. “As long as there are people out there who are unaware of their HIV status, there is a great risk of transmission. If you do not know your status, you cannot access the care you need and you can unknowingly spread the virus to others. Everybody needs to know their status.”
APICHA’s Chief Medical officer and Executive Director will brief the media about the issue and the campaign at the May 19 press conference and can be made available for interview prior to the announced. Mayor Michael Bloomberg, Governor David Patterson and other elected offices have been invited to attend the press conference.
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How Hospitals Treat Same-Sex Couples
For same-sex couples, a ring and legal papers may not be enough to navigate the health system.
During a medical emergency, a patient’s husband, wife, parents or other family members often are close by, overseeing treatment, making medical decisions and keeping vigil at the bedside.
But what happens if the hospital won’t allow you to stay with your partner or child?
That’s the challenge many same-sex couples face during health care emergencies when hospital security personnel, administrators and even doctors and nurses exclude them from a patient’s room because they aren’t “real” family members. The issue is addressed in a new report from The Human Rights Campaign Foundation, a gay, lesbian, bisexual and transgender civil rights group, and the Gay and Lesbian Medical Association. The groups have created a Healthcare Equality Index for hospitals that focuses on five key areas: patient rights, visitation, decision-making, cultural competency training and employment policies and benefits.
This year, 166 facilities across the country agreed to participate in the report, about twice as many as last year. The group says nearly 75 percent of the hospitals have policies to protect their patients from discrimination on the basis of sexual orientation. However, sometimes the policies aren’t correctly implemented by hospital workers. Some examples of unfair treatment of gay couples cited by the group include:
- A Bakersfield, Calif., couple rushed their child to the emergency room with a 104 degree fever. The women were registered domestic partners, but the hospital only allowed the biological mother to stay with the child. Although hospitals typically allow both parents to stay with a child during treatment, in this case, the second parent was forced to stay in the waiting room.
- An Oregon man whose registered domestic partner was unconscious was told to leave the hospital room because it was time for family members to make decisions about his care. He was forced to plead his case before hospital administrators before being allowed to stay with his partner, who was dying.
- A woman from Washington collapsed while on vacation in Miami. Although her partner had an advanced health care directive, hospital officials told her she wasn’t a family member under Florida law. The woman spent hours talking with hospital administrators to prove that the document from her home state was, in fact, still valid in Florida. Although she eventually prevailed, her partner’s condition deteriorated and the woman died. Because of the problem, the children the patient had been raising with her partner weren’t able to see her before she died.
While heterosexual couples typically don’t have to provide marriage licenses to hospitals in order to prove they are husband and wife, same sex couples often must document their relationship to hospital officials before being allowed to take part in a partner’s care.
“There is a real disconnect between what might be a good written policy or state law and actual implementation of that policy or law,” said Ellen Kahn, family project director for the HRC. “If you’re presenting as two men in a couple and you say, ‘This is my partner. I’ll make medical decisions,’ you’re asked a lot of questions. Who is this person to you? Do you have legal documentation that verifies that? A parent, sister or nephew could have more rights under the law than a same-sex partner who has been together 20 years.”
Although many hospitals have improved their treatment of same-sex couples, partners are advised to keep legal documents close by in the event of a medical emergency. Friends should also have ready access to documents so they can fax or e-mail them if necessary.
For couples who don’t have documentation or are worried that their relationship might not be recognized during a medical emergency, the solution often is to pretend to be a sibling in order to ensure access to a partner.
“If you’re on the road and have a crisis, the word on the street is just say, ‘This is my sister,’ or ‘This is my brother,’ ” Ms. Kahn said. “Most people won’t raise an eyebrow about it unless you look very different. It’s sad that we have to think about that. Am I going to be better off saying this is my sister or this is my life partner?”
How Hospitals Treat Same-Sex Couples
May 12, 2009
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Historic effort to boost HIV/AIDS testing in Asian and Pacific Islander (A&PI) communities.Set
NEW YORK, NY, – Asian & Pacific Islander Coalition on HIV/AIDS, Inc. (APICHA) will announce the launch of “TEST ME / for hiv”, a historic effort to address a major discrepancy and public health problem – very limited access to HIV testing and increasing infection rates in the Asian and Pacific Islander (A&PI) communities.
On May 19 2009, A&PI HIV/AIDS Awareness Day, APICHA will be joined by elected officials and community leaders on the steps of City Hall to launch the campaign and urge the public to take control. May is also Asian Heritage month.
Currently, A&PIs are the only racial/ethnic group in New York that has not experienced a decline in the number of new HIV diagnoses, but only six percent (6%) of A&PI New Yorkers report that their doctor recommended an HIV test. This presents a major public health concern that could have a far-reaching impact.
The heart of the “TEST ME/for hiv” campaign will be a coordinated effort to have volunteers visit their doctor’s office wearing a tee shirt that reads “TEST ME / for hiv”. The action is meant to initiate the conversation and create an opportunity to educate doctors about the discrepancy.
APICHA’s Chief Medical officer and Executive Director will brief the media about the issue and the campaign at the May, 19 press conference. Mayor Michael Bloomberg, Governor David Paterson and other elected officials have been invited to join in launching the campaign.
APICHA’s is the only Pan-Asian HIV/AIDS organization devoted to working with A&PI communities in New York City.
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Safer or Stupid? Some Gay Men ‘PrEP’ for Sex
More than two decades into the AIDS epidemic, the well-known conundrum of condom burnout among gay men has produced a highly controversial underground practice. “Pre-exposure prophylaxis,” or PrEP, involves taking a comprehensive anti-retroviral drug, usually tenofivir, before having sex.
Some men are actually doing this because they take safer sex seriously indeed. One doctor told me of two patients who took the drug before they had protected sex with strangers as an added preventative in case a condom breaks.
But for the vast majority of gay men, PrEP means a key to not using a condom. That’s what makes it such a hot-button issue among AIDS researchers, doctors and activists. The theory behind is that the anti-retroviral drug prevents HIV from grafting itself onto healthy cells and replicating. When HIV first enters the human body, there isn’t much of it; theoretically, if those few viruses swimming around the bloodstream don’t have anywhere to go, they’ll die out–just as do millions of germs we come across every day that don’t affect us.
One prominent doctor in Boston maintained that PrEP, despite its bad rep, is necessary as one more tool in the arsenal of AIDS fighters. But others see it as an enabler for those men who don’t want to bother using protection. See Safer or Stupid? Some Gay Men ’PrEP’ for Sex
EDGE Boston -
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SF summit looks at lesbian health issues
SAN FRANCISCO — The first problem surfaced when Dulce Garcia went to a San Francisco clinic two years ago for her annual physical. As she filled out the intake form, all the questions assumed she was straight.
Then in the examining room, a nurse repeatedly offered her a pregnancy test and birth control.
“She kept telling me Latino women have a high risk of pregnancy,” said Garcia, a health educator who teaches youths about disease prevention. “I had to out myself right there and then. The nurse seemed shocked that I wasn’t heterosexual. Even here in San Francisco, this kind of thing happens.”
The health concerns of lesbians, from interpersonal difficulties in doctors’ offices to the high prevalence of risk factors for heart disease and many cancers, will be highlighted at a national summit this weekend in San Francisco.
“This conversation is long overdue,” said Dr. Sandra Hernandez, chief executive of the San Francisco Foundation and an assistant clinical professor at UCSF. “This is the first summit to bring together clinicians, scientists, leaders in their communities to discuss these issues.
“The summit will call for more research into lesbian health, and more funding for research.”
Women’s health has become a focal point of medical study relatively recently.
See SF summit looks at lesbian health issues
San Francisco Chronicle
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WHO: Doctors failing to test seniors for HIV
(New York City) The medical profession is failing to test people over 50 for HIV/AIDS despite evidence that the sex lives of seniors have been greatly extended by erectile dysfunction drugs, according to a new report by the World Health Organization.
The report, appearing in the WHO Bulletin, notes that not …
Obama to repeal Bush ‘provider conscience’ regulations
(Washington) The Obama administration is expected this week to begin the process of repealing so-called “provider conscience” regulations that could have been used to discriminate against gays, people with HIV/AIDS, and women seeking abortions.
The regulations, instituted in the last days of the Bush administration, strengthened job protections for doctors and …
Gay Rights: Lesbian Sues Hospital Over Denied Access To Dying Partner
As her partner of 17 years slipped into a coma, Janice Langbehn pleaded with doctors and anyone who would listen to let her into the woman’s hospital room.
Eight anguishing hours passed before Langbehn would be allowed into Jackson Memorial Hospital’s Ryder Trauma Center. By then, she could only say her final farewell as a priest performed the last rites on 39-year-old Lisa Marie Pond.
Jackson staffers advised Langbehn that she could not see Pond earlier because the hospital’s visitation policy in cases of emergency was limited to immediate family and spouses — not partners. In Florida, same-sex marriages or partnerships are not recognized. On Friday, two years after her partner’s death, Langbehn and her attorneys were in federal court, claiming emotional distress and negligence in a suit they filed last June.
Jackson attorneys filed a motion to dismiss the case on grounds that the hospital has no obligation to allow patients’ visitors.
Following a hearing lasting more than an hour Friday, U.S. District Judge Adalberto Jordan said he would try to decide soon whether the case could proceed to trial. He gave no specific date.
See Gay Rights: Lesbian Sues Hospital Over Denied Access To Dying Partner
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Businessman offers $100M toward AIDS vaccine research
The hunt for an AIDS vaccine, a scientific quest that has stumped infectious disease researchers for two decades, is receiving a $100 million boost from a Massachusetts technology magnate, whose gift will create a Boston institute fusing the expertise of doctors, engineers, and biologists.
Stunned by scenes of desperation he witnessed in HIV-ravaged South Africa, Phillip Terrence Ragon is spending a considerable chunk of his fortune to accelerate research for a vaccine that would slow the relentless spread of the virus that causes AIDS and now infects more than 33 million people worldwide.
The money, $10 million a year for the next decade, will go to Massachusetts General Hospital but be shared with other research powerhouses, including Harvard University and the Massachusetts Institute of Technology. An announcement of the gift, the largest in Mass. General’s history, is expected this morning from Ragon, 59, the founder and sole owner of InterSystems, a Cambridge company that provides database software to hospitals and other industries.
See Businessman offers $100M toward AIDS vaccine research
The Boston Globe
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New Bush medical rules could harm LGBT, HIV patients
(Washington) The Bush administration, in its final days, has issued a federal rule reinforcing protections for doctors and other health care workers who refuse to participate in abortions and other procedures because of religious or moral objections.
Critics say the protections are so broad they limit a patient’s right to get …
